Hello World

As with any blog it needs an introduction, and I will follow that lead here as well. My name of course is Jaclyn, and my husbands is Joe. In September 2011 I gave birth to our first child, a beautiful baby girl who will call Rooster. She was beautiful and everything seemed great. She had a crease in her forehead, but they said it was most likely due to the way she was laying in me. At 2 months we had an ultrasound of her soft spot because it seemed rather large. Everything came back normal and we went on with our lives thinking things were great. Flash to her 4 month appointment while in Florida visiting and everything changed. The pediatrician  here said something wasn't right, so we went to see a pediatric neurosurgeon to see what they said. The neurosurgeon said that Rooster has Craniosynotosis, you can read more about it here. The jist of it is that some of the bones in her head have fused prematurely.

Now we are preparing for surgery, we are also trying to get Joe home so that he can be here for her surgery. We went for our CT appointment this afternoon, and this Friday we have our eye exam. Until our surgery we will be going about our days as normal.

Some facts about Rooster:

She is 5 months old & is 13 pounds
She loves Elmo, in particular the youtube video Elmo and I know it
She is already a water bug, and will spend hours in the tub if you let her.
Since being in Florida she has enjoyed spending our afternoons outside.
She loves any food in the mesh bag things...with a spoon, she is rather picky.
There is so much more I could name, but these are our newest things.

This is Rooster at birth. You can see the crease in her nose.

This is Rooster today!