Some pictures since her surgery!!
Tuesday, April 24, 2012
2 weeks post op
We got to come home Sunday and that night her eyes started opening back up, and by Wednesday she could see out of both eyes. She is the same 'ol Rooster as ever, she hasn't slowed down one step do to the surgery and it is so great. She is looking fantastic and every day it amazes me at how great she is doing and how great she looks.
I can definitely tell a difference in her face as well, her forehead is more rounded and her eyes aren't as sunken in as much as they once were. She is going to be even more beautiful than she was before the surgery.
Yesterday(Monday) she got her stitches snipped by her Craniofacial surgeon, she said that her body will push them out and that as she gets a bath they will fall out as well. Her scar looks fantastic!!! It is so small and they did a great job with it. Her hair is already growing back, and fast! I can't wait for it to start getting long!
Her reflux has been acting up lately, and the surgeon said that could be because of the hormone shift after surgery or from the breathing tube during surgery irritating her.
We can't thank everyone enough for the prayers and good vibes! Our journey is just beginning in the road to recovery, but with the way time has been flying by, I am sure her 1 year noggin day will be here before we know it.
Sunday, April 15, 2012
Post Surgery updates
The swelling never got as bad as anyone thought it would, actually yesterday was suppose to be the worst day, yet it was her best looking day! The bruising was dark, but it was healing great! She started acting like her normal self on Friday and thankfully we got to leave the ICU on Friday afternoon and move to a regular room. By Saturday she was back to sitting up and talking and playing, it was great to see her back to her happy self, Saturday night was bad, because she had some bad gas so it was a rough night for all of us. It was worth it though because today we got to come HOME!
It has been nice being back home and it was so cute to see the balloons and signs all the neighbors made for her. It was topped off because she has started opening her left eye enough to see just a tiny bit! One neighbor brought over dinner for us and it was so good. She got a bath to clean her up and she was playing and moving all around.
I am so glad the surgery is behind us, and now we have nothing but moving forward to do. I am looking forward to watching her to continue to grow, learn and play. The neurosurgeon told us it would take about 3 weeks for the swelling to completely go down, but with the way she has been going maybe she will keep surprising us. I am already thinking of her 9 month photo op moments!
Thank you to everyone for all the thoughts, prayers, and gifts that you have showered my family with. I couldn't ask to have better people in my life, you are all truly amazing and God has blessed me with more than I could ever ask for.
Thursday, April 12, 2012
Surgery Day
Oh boy what a long day!
Our day started with a crazy 415am wake up call. We had to be at pre-op by 6am, which meant leaving my parents house by 5am to make sure we are not rushed.
Pre-op went great. Just vitals and making sure she looks good. Wiped her down with some special warm wipes and got her in her gown with a fresh diaper. After pre-op we took her to a surgery holding area to meet the whole surgery team before handing her over. Once she was in the nurses arms I immediately wanted to take her back and run.
The wait during surgery was actually not bad. My friend alicia was there and her, Joe and myself played phase 10 to pass the time. We received 3 phone calls during everything so that helped a lot. It went a lot quicker than any of us were expecting. We met with the surgeons afterwards real quick, and the answered a few questions.
We got to see Rooster about 30 minutes later in recovery, and she looked a lot better than I thought. The swelling was still light, as was the bruising. From the PACU we went over to PICU where we would settle in for the day. PICU is no joke, it doesn't look to bad, but it drains you. When we got here she still had everything necessary hooked up to her, and I just wanted to hold her and snuggle her all day. Joe and I did decide not to hold her today, only because she was sleeping so well that it wasn't necessary to wake her for our benefit.
After a while we started taking turns with the family that was here for her so they could all spend some time with her. Over the course of the day the bruising and swelling has gotten slightly worse, but we have been warned the swelling will get worse. Joe and I have gotten to eat, and as I type he is sleeping while I 'stand guard' to a semi restless Rooster.
I will say this, she is totally herself. She has been awake some tonight and its reassuring to see her acting like her laid back self, just with closed eyes. She knows Joe and I are here, and she will hold us so tight you have to pry her off your hand/finger to switch. We played her favorite song 50 times on repeat as a soother.
Tomorrow, hopefully she will go to her regular room out on the floor and out of PICU. We have also heard her gauze on her head should come off tomorrow as well.
It is so hard seeing her like this, but I'm doing my best to hold it together and know that this is just what God planned for her and us. She will return to her normal spitfire of a self within time and we will remember this day as Noggin Day 2012 and one that basically saved her life.
We have had an outpouring of love from family and friends and friends of friends. The thoughts and prayers from everyone have been heard. God is good! He looked after Rooster during surgery and all day today and I know that he will continue to do so.
So, as I said before Noggin Day 2012 will always be remembered. :)
Tuesday, April 10, 2012
Updates!
So we have seen the surgeon, pediatrician and done our pre-op since my last post.
We thought that she had a sinus infection according to the pediatrician, but turns out it was nothing. The surgeon saw her again and said everything looks great, and that our surgery time for moved up to a 730am start time. She did warn us that we could possibly be in the hospital until Sunday or Monday, but it just depends on how Rooster is doing and what the they see.
Today we had her pre-op appointment at the hospital and that was no fun. They had to get some blood from her and had to fish around for her little veins while four of us held her still. We have to be at the hospital at 6am on Thursday, so it will be an early morning for everyone here. We got to talk to one of the anesthesiologist, and ask any questions we had. She did warn us that she will have a breathing tube and be asleep all day Thursday, so that was a slight shock since we didn't know that.
I am a lot more nervous now than I have been since we found out she would need surgery. We did enjoy a nice afternoon at the pool with our friends and tomorrow we will be taking it easy before the big day.
If everyone could keep us in your prayers, we would greatly appreciate it. We are having a prayer night tomorrow with neighbors and I truly believe God will protect my baby girl.