I warned you in the very beginning, that I am horrible at keeping up with a blog. Well a bunch of people have been asking how Rooster has been and instead of writing everything out a million times, I figured why not hop on here and update everyone at once. Plus I figure I should come on here and keep myself accountable for updating this thing every now and then.
Rooster is doing great!! If anyone thought surgery would slow her down or make her fearful they couldn't of been more wrong. She has no fear and is on full steam ahead. I went back to work part time in June, so she started daycare and I couldn't of made a better decision. She loves it there and she learns so much. I love all the ladies at her daycare and I will be a little sad when she moves up to the one year old room.
Kids
She has been walking since around 8/9 months and hasn't slowed down, she is now getting the hang of running. She isn't the most graceful child though, but that doesn't stop her. She loves to talk as well! She has a long list of words she can say and sometimes she surprises us with new ones daily, or she just blurts something out like it's no big deal.
She turned 11 months old yesterday! I can't believe in a month I will have a one year old! Where did this past year go? It doesn't help that it was one crazy year all in all. Last year I never thought I would be back living in Florida, but I wouldn't change it for the world. This feels like home, and I know we are where we are suppose to be. We have been blessed with all the people in our lives, and for all the support they have given to us.
At 11 months, Rooster loves:
Walking and trying to run
Playing chase/hide-and-go-seek
Talking
Sharing her food with the dogs
Her "word whammer" toy that sings the ABCs
Elmo
At her last visit last week she weighed 18 pounds 5 ounces!
:)
Wednesday, August 29, 2012
Saturday, May 26, 2012
Check and re-check
So, I have become a lazy 'blogger', oops my bad. Anyways, last Monday Rooster had another appointment with the Craniofacial surgeon. This was the appointment I was slightly dreading because at our last appointment she said she might put Rooster in a helmet. Well, she didn't! She said everything looks fantastic and she is doing so well. She said the scar is at its 'ugliest' phase right now and to just keep massaging it and it will look better in no time. The next time we see her will be in October around the 6 month mark and it will be with the Craniofacial team-which consist of the Craniofacial dr, the neurosurgeon, a hearing doctor, a speech doctor and a Psychologist.
On Wednesday we meet with our new Pediatrician, I decided since we are staying in Florida I mind as well take her to a doctor that I am going to enjoy taking her too. I am so glad I switched her because her new doctor is fantastic! He was so nice and friendly, so it wasn't dreaded. She is caught up on her shots, has a clean bill of health and we have her '8' month stats.
She is 27 inches tall which puts her in the 28th percentile
She weighs 15.02 pounds which puts her in the 13th percentile
Her head is 42cm round which puts her in the 26th percentile
Everything is great, she is on the thin side, but the Dr. said that is fine as long as long as she continues to gain weight, if I feel like she isn't getting bigger or is staying the same I need to take her back in. We won't see him again until October as well for her 1 year appointment!
1 year appointment???!!! Where did my baby go? I really need to start thinking of what we are going to do for her birthday party! I am pretty sure I know where we are going to have it and when, but no idea on decor or anything like that.
Oh! My news is I am patiently waiting to hear back about a job I interviewed for on Tuesday! I am really excited and nervous, this would be a great job for me. Fingers crossed for good news. Joe is deployed again, but this time I see it as a good thing because now that he is gone it is only a short while before he is here with us again and this time for good!!
Oh last thing before I forget!! Rooster said "mama" last night!!! Of course I was nowhere around and it was with the babysitter, but I am still excited she finally said it!! Woohooo! :)
Okay that is all, go about your regularly scheduled program for the day!
:)
On Wednesday we meet with our new Pediatrician, I decided since we are staying in Florida I mind as well take her to a doctor that I am going to enjoy taking her too. I am so glad I switched her because her new doctor is fantastic! He was so nice and friendly, so it wasn't dreaded. She is caught up on her shots, has a clean bill of health and we have her '8' month stats.
She is 27 inches tall which puts her in the 28th percentile
She weighs 15.02 pounds which puts her in the 13th percentile
Her head is 42cm round which puts her in the 26th percentile
Everything is great, she is on the thin side, but the Dr. said that is fine as long as long as she continues to gain weight, if I feel like she isn't getting bigger or is staying the same I need to take her back in. We won't see him again until October as well for her 1 year appointment!
1 year appointment???!!! Where did my baby go? I really need to start thinking of what we are going to do for her birthday party! I am pretty sure I know where we are going to have it and when, but no idea on decor or anything like that.
Oh! My news is I am patiently waiting to hear back about a job I interviewed for on Tuesday! I am really excited and nervous, this would be a great job for me. Fingers crossed for good news. Joe is deployed again, but this time I see it as a good thing because now that he is gone it is only a short while before he is here with us again and this time for good!!
Oh last thing before I forget!! Rooster said "mama" last night!!! Of course I was nowhere around and it was with the babysitter, but I am still excited she finally said it!! Woohooo! :)
Okay that is all, go about your regularly scheduled program for the day!
:)
Monday, May 14, 2012
Mothers Day
Happy one day late Mothers day!!!!
I hope everyone had a splendid day and were pampered in one way or another. I had a fantastic day! My mom, sister, Rooster and myself all went to the Florida Aquarium, and Rooster was more aware of all the animals so it was a lot of fun. They have a little water play area there too, so we let her splash in the water for a bit before heading out. We ended up going to Joanns to pick some things up, and then enjoyed dinner at Carrabbas where Ryan enjoyed a plate of mashed potatoes.
Everyday is something new with her, and it is amazing to see her in actions. It is hard to believe she will be 8 months old in a couple weeks! Where is the time going? I am trying to brainstorm ideas for her first birthday because I know it will be here in a flash and I don't want to be scrambling to get everything I want done.
In other news there isn't much going on, Joe is preparing for his last deployment with the Navy and I am looking around for a job and trying to open up an Etsy shop for my crochet projects.
Happy Monday! :)
I hope everyone had a splendid day and were pampered in one way or another. I had a fantastic day! My mom, sister, Rooster and myself all went to the Florida Aquarium, and Rooster was more aware of all the animals so it was a lot of fun. They have a little water play area there too, so we let her splash in the water for a bit before heading out. We ended up going to Joanns to pick some things up, and then enjoyed dinner at Carrabbas where Ryan enjoyed a plate of mashed potatoes.
Everyday is something new with her, and it is amazing to see her in actions. It is hard to believe she will be 8 months old in a couple weeks! Where is the time going? I am trying to brainstorm ideas for her first birthday because I know it will be here in a flash and I don't want to be scrambling to get everything I want done.
In other news there isn't much going on, Joe is preparing for his last deployment with the Navy and I am looking around for a job and trying to open up an Etsy shop for my crochet projects.
Happy Monday! :)
Tuesday, May 8, 2012
Neuro Visit.
This week will be a whole month since Roosters surgery! I can't believe it has already been a month, and I can't believe how well she is doing. It is like her surgery never happened in her mind(me I am always on watch over making she she doesn't bang her head to much), which is a great thing. She hasn't missed a beat and I thank God every day for the amazing little girl he has given me.
In the past month she has begun crawling, pulling up and standing(for a short period of time). She is even more beautiful now, and you can really see the difference when you look back.
Today we had our first follow up appointment with the Neurosurgeon. Ryan was in a great mood so that was nice. She looked at a bump on her head that came about last week, and said it is most likely a piece of bone, but it is nothing to worry about. She said as her head grows and everything moves around it should fall into place and seal up with time. I asked when do we need to start being concerned about it, and she said not until next year, so that was reassuring. I mentioned the possibility of a helmet that the Craniofacial surgeon mentioned last appointment and she said she doesn't think it is needed and that she is looking great. She removed the rest of the stitches, measured her head and that was that.
I am glad that she doesn't want Rooster in a helmet because neither did I, they aren't as simple as some people think. I did ask about her falling and hitting her head, she said it would have to be a very severe fall in order for it to do any harm to the work they did. She told me to relax and not stress myself out about her pulling herself up and falling.
So far so good with everything then. She has been doing great otherwise, getting taller everyday and talking more too... I am still waiting for her to say Mama! Diaper changes ignite WW3 and she prefers being in just a diaper at all times.
I need to start thinking of ideas for her birthday so I can order what I need to and have everything planned out because I know it will be here before I want it to be. I am thinking of something simple yet classy, but have no idea what yet.
So on that note I am off to try and attempt to do a couple loads of laundry and find a home for all the baby food I got yesterday!
Happy Nap Time :)
In the past month she has begun crawling, pulling up and standing(for a short period of time). She is even more beautiful now, and you can really see the difference when you look back.
Today we had our first follow up appointment with the Neurosurgeon. Ryan was in a great mood so that was nice. She looked at a bump on her head that came about last week, and said it is most likely a piece of bone, but it is nothing to worry about. She said as her head grows and everything moves around it should fall into place and seal up with time. I asked when do we need to start being concerned about it, and she said not until next year, so that was reassuring. I mentioned the possibility of a helmet that the Craniofacial surgeon mentioned last appointment and she said she doesn't think it is needed and that she is looking great. She removed the rest of the stitches, measured her head and that was that.
I am glad that she doesn't want Rooster in a helmet because neither did I, they aren't as simple as some people think. I did ask about her falling and hitting her head, she said it would have to be a very severe fall in order for it to do any harm to the work they did. She told me to relax and not stress myself out about her pulling herself up and falling.
So far so good with everything then. She has been doing great otherwise, getting taller everyday and talking more too... I am still waiting for her to say Mama! Diaper changes ignite WW3 and she prefers being in just a diaper at all times.
I need to start thinking of ideas for her birthday so I can order what I need to and have everything planned out because I know it will be here before I want it to be. I am thinking of something simple yet classy, but have no idea what yet.
So on that note I am off to try and attempt to do a couple loads of laundry and find a home for all the baby food I got yesterday!
Happy Nap Time :)
Tuesday, May 1, 2012
Time is flying
I am a horrible blogger, and it is sad because I enjoy doing it. But onto more important things.
Can you believe that it is May already?? Time really does fly when you are having fun!
Rooster is doing amazing! Her incision is completely healed and is healing great. She is becoming more and more mobile than ever, she is no longer satisfied playing on the floor. She wants to crawl faster than she does, along with stand and walk. Everyone tells me that once she starts all of that I will want to take it back, but the truth is I know she will be a happier baby once she can do all of that. She gets so frustrated that she can't do any of it that she whines and cries.
Her wanting to be more mobile doesn't help my anxiety that she is going to bump her head a little too hard. I am always worried about her, I know the doctors told me it would take a major fall or bump to harm anything, but I can't help worrying.
Her swelling is almost all the way down and she looks great!! I can't wait until the doctors tell us we don't have to come back until a year from now. We have 2 appointments this month and the one on the 21st should be our last for a while. There is a possibility of her being put in a helmet if they don't like how things are looking, but we should be able to avoid that as long as everything continues to go well.
Joe has returned to Japan, but the good news is the next time he is here it will be for good. This will be a big change in our lives, but it will work out how God intends it too. We have made the decision that we will be moving to Florida for good, have I mentioned that before? I feel like I have, my bad if so.
I have applied for a couple jobs, so we will see what turns up. I am nervous because I really need to find something before Joe gets home. I am also going to be opening an Etsy store soon, I would like to sell more hats that I make. I also, need to schedule more time to work on said hats, having a crazy 7 month old doesn't help.
Okay, speaking of that 7 month old she is waking up from her nap!
:)
Can you believe that it is May already?? Time really does fly when you are having fun!
Rooster is doing amazing! Her incision is completely healed and is healing great. She is becoming more and more mobile than ever, she is no longer satisfied playing on the floor. She wants to crawl faster than she does, along with stand and walk. Everyone tells me that once she starts all of that I will want to take it back, but the truth is I know she will be a happier baby once she can do all of that. She gets so frustrated that she can't do any of it that she whines and cries.
Her wanting to be more mobile doesn't help my anxiety that she is going to bump her head a little too hard. I am always worried about her, I know the doctors told me it would take a major fall or bump to harm anything, but I can't help worrying.
Her swelling is almost all the way down and she looks great!! I can't wait until the doctors tell us we don't have to come back until a year from now. We have 2 appointments this month and the one on the 21st should be our last for a while. There is a possibility of her being put in a helmet if they don't like how things are looking, but we should be able to avoid that as long as everything continues to go well.
Joe has returned to Japan, but the good news is the next time he is here it will be for good. This will be a big change in our lives, but it will work out how God intends it too. We have made the decision that we will be moving to Florida for good, have I mentioned that before? I feel like I have, my bad if so.
I have applied for a couple jobs, so we will see what turns up. I am nervous because I really need to find something before Joe gets home. I am also going to be opening an Etsy store soon, I would like to sell more hats that I make. I also, need to schedule more time to work on said hats, having a crazy 7 month old doesn't help.
Okay, speaking of that 7 month old she is waking up from her nap!
:)
Tuesday, April 24, 2012
2 weeks post op
Can you believe it has been almost 2 weeks since Roosters surgery? Me either! Time really is flying by, and that isn't always a good thing. I thought after her surgery she would be laid up and miserable for a while, but that is totally not the case with her.
We got to come home Sunday and that night her eyes started opening back up, and by Wednesday she could see out of both eyes. She is the same 'ol Rooster as ever, she hasn't slowed down one step do to the surgery and it is so great. She is looking fantastic and every day it amazes me at how great she is doing and how great she looks.
I can definitely tell a difference in her face as well, her forehead is more rounded and her eyes aren't as sunken in as much as they once were. She is going to be even more beautiful than she was before the surgery.
Yesterday(Monday) she got her stitches snipped by her Craniofacial surgeon, she said that her body will push them out and that as she gets a bath they will fall out as well. Her scar looks fantastic!!! It is so small and they did a great job with it. Her hair is already growing back, and fast! I can't wait for it to start getting long!
Her reflux has been acting up lately, and the surgeon said that could be because of the hormone shift after surgery or from the breathing tube during surgery irritating her.
We can't thank everyone enough for the prayers and good vibes! Our journey is just beginning in the road to recovery, but with the way time has been flying by, I am sure her 1 year noggin day will be here before we know it.
We got to come home Sunday and that night her eyes started opening back up, and by Wednesday she could see out of both eyes. She is the same 'ol Rooster as ever, she hasn't slowed down one step do to the surgery and it is so great. She is looking fantastic and every day it amazes me at how great she is doing and how great she looks.
I can definitely tell a difference in her face as well, her forehead is more rounded and her eyes aren't as sunken in as much as they once were. She is going to be even more beautiful than she was before the surgery.
Yesterday(Monday) she got her stitches snipped by her Craniofacial surgeon, she said that her body will push them out and that as she gets a bath they will fall out as well. Her scar looks fantastic!!! It is so small and they did a great job with it. Her hair is already growing back, and fast! I can't wait for it to start getting long!
Her reflux has been acting up lately, and the surgeon said that could be because of the hormone shift after surgery or from the breathing tube during surgery irritating her.
We can't thank everyone enough for the prayers and good vibes! Our journey is just beginning in the road to recovery, but with the way time has been flying by, I am sure her 1 year noggin day will be here before we know it.
Sunday, April 15, 2012
Post Surgery updates
Updating in the hospital was to crazy, so sorry for the lack of details, but I tried to keep my Facebook updated as much as I could. My poor phone was in overdrive this past week with the out pour of love from everyone.
The swelling never got as bad as anyone thought it would, actually yesterday was suppose to be the worst day, yet it was her best looking day! The bruising was dark, but it was healing great! She started acting like her normal self on Friday and thankfully we got to leave the ICU on Friday afternoon and move to a regular room. By Saturday she was back to sitting up and talking and playing, it was great to see her back to her happy self, Saturday night was bad, because she had some bad gas so it was a rough night for all of us. It was worth it though because today we got to come HOME!
It has been nice being back home and it was so cute to see the balloons and signs all the neighbors made for her. It was topped off because she has started opening her left eye enough to see just a tiny bit! One neighbor brought over dinner for us and it was so good. She got a bath to clean her up and she was playing and moving all around.
I am so glad the surgery is behind us, and now we have nothing but moving forward to do. I am looking forward to watching her to continue to grow, learn and play. The neurosurgeon told us it would take about 3 weeks for the swelling to completely go down, but with the way she has been going maybe she will keep surprising us. I am already thinking of her 9 month photo op moments!
Thank you to everyone for all the thoughts, prayers, and gifts that you have showered my family with. I couldn't ask to have better people in my life, you are all truly amazing and God has blessed me with more than I could ever ask for.
The swelling never got as bad as anyone thought it would, actually yesterday was suppose to be the worst day, yet it was her best looking day! The bruising was dark, but it was healing great! She started acting like her normal self on Friday and thankfully we got to leave the ICU on Friday afternoon and move to a regular room. By Saturday she was back to sitting up and talking and playing, it was great to see her back to her happy self, Saturday night was bad, because she had some bad gas so it was a rough night for all of us. It was worth it though because today we got to come HOME!
It has been nice being back home and it was so cute to see the balloons and signs all the neighbors made for her. It was topped off because she has started opening her left eye enough to see just a tiny bit! One neighbor brought over dinner for us and it was so good. She got a bath to clean her up and she was playing and moving all around.
I am so glad the surgery is behind us, and now we have nothing but moving forward to do. I am looking forward to watching her to continue to grow, learn and play. The neurosurgeon told us it would take about 3 weeks for the swelling to completely go down, but with the way she has been going maybe she will keep surprising us. I am already thinking of her 9 month photo op moments!
Thank you to everyone for all the thoughts, prayers, and gifts that you have showered my family with. I couldn't ask to have better people in my life, you are all truly amazing and God has blessed me with more than I could ever ask for.
Thursday, April 12, 2012
Surgery Day
Oh boy what a long day!
Our day started with a crazy 415am wake up call. We had to be at pre-op by 6am, which meant leaving my parents house by 5am to make sure we are not rushed.
Pre-op went great. Just vitals and making sure she looks good. Wiped her down with some special warm wipes and got her in her gown with a fresh diaper. After pre-op we took her to a surgery holding area to meet the whole surgery team before handing her over. Once she was in the nurses arms I immediately wanted to take her back and run.
The wait during surgery was actually not bad. My friend alicia was there and her, Joe and myself played phase 10 to pass the time. We received 3 phone calls during everything so that helped a lot. It went a lot quicker than any of us were expecting. We met with the surgeons afterwards real quick, and the answered a few questions.
We got to see Rooster about 30 minutes later in recovery, and she looked a lot better than I thought. The swelling was still light, as was the bruising. From the PACU we went over to PICU where we would settle in for the day. PICU is no joke, it doesn't look to bad, but it drains you. When we got here she still had everything necessary hooked up to her, and I just wanted to hold her and snuggle her all day. Joe and I did decide not to hold her today, only because she was sleeping so well that it wasn't necessary to wake her for our benefit.
After a while we started taking turns with the family that was here for her so they could all spend some time with her. Over the course of the day the bruising and swelling has gotten slightly worse, but we have been warned the swelling will get worse. Joe and I have gotten to eat, and as I type he is sleeping while I 'stand guard' to a semi restless Rooster.
I will say this, she is totally herself. She has been awake some tonight and its reassuring to see her acting like her laid back self, just with closed eyes. She knows Joe and I are here, and she will hold us so tight you have to pry her off your hand/finger to switch. We played her favorite song 50 times on repeat as a soother.
Tomorrow, hopefully she will go to her regular room out on the floor and out of PICU. We have also heard her gauze on her head should come off tomorrow as well.
It is so hard seeing her like this, but I'm doing my best to hold it together and know that this is just what God planned for her and us. She will return to her normal spitfire of a self within time and we will remember this day as Noggin Day 2012 and one that basically saved her life.
We have had an outpouring of love from family and friends and friends of friends. The thoughts and prayers from everyone have been heard. God is good! He looked after Rooster during surgery and all day today and I know that he will continue to do so.
So, as I said before Noggin Day 2012 will always be remembered. :)
Tuesday, April 10, 2012
Updates!
Sorry for the delay in posting, I will tell myself I need to post, and then forget.
So we have seen the surgeon, pediatrician and done our pre-op since my last post.
We thought that she had a sinus infection according to the pediatrician, but turns out it was nothing. The surgeon saw her again and said everything looks great, and that our surgery time for moved up to a 730am start time. She did warn us that we could possibly be in the hospital until Sunday or Monday, but it just depends on how Rooster is doing and what the they see.
Today we had her pre-op appointment at the hospital and that was no fun. They had to get some blood from her and had to fish around for her little veins while four of us held her still. We have to be at the hospital at 6am on Thursday, so it will be an early morning for everyone here. We got to talk to one of the anesthesiologist, and ask any questions we had. She did warn us that she will have a breathing tube and be asleep all day Thursday, so that was a slight shock since we didn't know that.
I am a lot more nervous now than I have been since we found out she would need surgery. We did enjoy a nice afternoon at the pool with our friends and tomorrow we will be taking it easy before the big day.
If everyone could keep us in your prayers, we would greatly appreciate it. We are having a prayer night tomorrow with neighbors and I truly believe God will protect my baby girl.
So we have seen the surgeon, pediatrician and done our pre-op since my last post.
We thought that she had a sinus infection according to the pediatrician, but turns out it was nothing. The surgeon saw her again and said everything looks great, and that our surgery time for moved up to a 730am start time. She did warn us that we could possibly be in the hospital until Sunday or Monday, but it just depends on how Rooster is doing and what the they see.
Today we had her pre-op appointment at the hospital and that was no fun. They had to get some blood from her and had to fish around for her little veins while four of us held her still. We have to be at the hospital at 6am on Thursday, so it will be an early morning for everyone here. We got to talk to one of the anesthesiologist, and ask any questions we had. She did warn us that she will have a breathing tube and be asleep all day Thursday, so that was a slight shock since we didn't know that.
I am a lot more nervous now than I have been since we found out she would need surgery. We did enjoy a nice afternoon at the pool with our friends and tomorrow we will be taking it easy before the big day.
If everyone could keep us in your prayers, we would greatly appreciate it. We are having a prayer night tomorrow with neighbors and I truly believe God will protect my baby girl.
Friday, March 30, 2012
Time is ticking
2 weeks!!!!!!!!!
Less than two weeks ladies & gentlemen, Rooster's surgery is in less than two weeks. I am nervous and anxious all at the same time. I have turned everything over to God and I am just following along his path he has carved for us. I am just ready for this phase to be over with so we can go on and continue with things.
Joe gets here next weekend so that is exciting! Even for the cruddy reason, it is nice that we will be able to be together again for a short period of time when it wasn't expected.
I took Rooster to see the pediatrician this morning because they called yesterday saying they needed to see her. The CT scan showed she has a sinus infection, so she is on antibiotics to help with that. It doesn't effect her surgery date, but if after surgery they don't clear out we will have to go see an ENT to have them drained. The pediatrician said it is normal for the sinus passages to be narrow(which is her problem) with this type of Craniosynotosis.
Also on Wednesday Rooster turned 1/2 old! :) AKA 6 months old. Here are some fun facts:
-She weighs 14.6 pounds
-She is 25.5 inches long
-She can sit up unassisted
-She rocks on all fours and scoots
-She rolls over both ways
-She babbles up a storm
-She isn't a huge fan of food
-She is now in her 'big girl' car seat
-She has been in cloth diapers for 4 and a half months old
:)
Less than two weeks ladies & gentlemen, Rooster's surgery is in less than two weeks. I am nervous and anxious all at the same time. I have turned everything over to God and I am just following along his path he has carved for us. I am just ready for this phase to be over with so we can go on and continue with things.
Joe gets here next weekend so that is exciting! Even for the cruddy reason, it is nice that we will be able to be together again for a short period of time when it wasn't expected.
I took Rooster to see the pediatrician this morning because they called yesterday saying they needed to see her. The CT scan showed she has a sinus infection, so she is on antibiotics to help with that. It doesn't effect her surgery date, but if after surgery they don't clear out we will have to go see an ENT to have them drained. The pediatrician said it is normal for the sinus passages to be narrow(which is her problem) with this type of Craniosynotosis.
Also on Wednesday Rooster turned 1/2 old! :) AKA 6 months old. Here are some fun facts:
-She weighs 14.6 pounds
-She is 25.5 inches long
-She can sit up unassisted
-She rocks on all fours and scoots
-She rolls over both ways
-She babbles up a storm
-She isn't a huge fan of food
-She is now in her 'big girl' car seat
-She has been in cloth diapers for 4 and a half months old
:)
Thursday, March 22, 2012
Left wondering
So, nothing new has really happened since my last post. The surgery is scheduled, Joe is in limbo, but his leave has been approved so he will be here. On the 17th(St. Patrick's Day) my mom and I took Ryan to get some photos taken of her as her last pre-surgery/6 month photos. Here is a few of my favorites:
It was fun, and she was so good the whole time!
On a different note.. Today was the first time someone ever said the word 'deformity' to me in relation to Ryan. We had gone to bible study class and were getting lunch when someone asked the simple question of "What kind of surgery is she getting?"
My reply. "She has coronal Craniosynotosis"
"Oh, yes. I did notice the deformity"
Nothing wrong with that, but to me as a mother that hurt a little. Yes, does she have a deformity, yes, but that doesn't mean I need it pointed out to me. No one has ever said it to me before, and that was great, have people noticed it before? I am sure they have. I am not naive, I know my daughters head is shaped wrong, I know there is something wrong, but I don't necessarily want other to point it out for me when I am doing what needs to be done to fix it.
Maybe it just rubbed me the wrong way since it was the first time it has happened. From the pictures above and everyday, I think Rooster is beautiful :)
It was fun, and she was so good the whole time!
On a different note.. Today was the first time someone ever said the word 'deformity' to me in relation to Ryan. We had gone to bible study class and were getting lunch when someone asked the simple question of "What kind of surgery is she getting?"
My reply. "She has coronal Craniosynotosis"
"Oh, yes. I did notice the deformity"
Nothing wrong with that, but to me as a mother that hurt a little. Yes, does she have a deformity, yes, but that doesn't mean I need it pointed out to me. No one has ever said it to me before, and that was great, have people noticed it before? I am sure they have. I am not naive, I know my daughters head is shaped wrong, I know there is something wrong, but I don't necessarily want other to point it out for me when I am doing what needs to be done to fix it.
Maybe it just rubbed me the wrong way since it was the first time it has happened. From the pictures above and everyday, I think Rooster is beautiful :)
Wednesday, March 14, 2012
It's on the books.
Today we had Roosters follow up with the surgeon to go over the results from the eye appointment and CT scan. As we thought, everything with the scan looked normal except what we already knew about so no hidden surprises. We had our in office pre-op and were told our official surgery date:
April 12th
The date is about a month away, but we knew it would be sometime in April since the surgeon needs her to be at least 6 months old before she performs the surgery. This is a good thing because it gives us time to try and get Joe home to be here and everything. The only con is if she was to get sick, we need to have it cleared up at least a week before surgery. So fingers crossed she stays well and we can keep everything on track.
This past week has been so much fun, Rooster does something new everyday!! We went to the big pool yesterday, and of course she loved it. She would float in her little float and then I would take her out and she would splash and giggle. The cutest thing was her wearing her little sunglasses! Out of nowhere yesterday she started getting herself up onto her knees and rocking. I took this video earlier while skyping with Joe.
As some people know I co-sleep with Rooster and once she has this surgery we will have to give that up( :( ), but getting her into a crib, is not so easy..Today though,as in right now, she is peacefully napping in her crib. I put her in there and only had to go back in one time and she was out. So a big hooray for that as well.
Okay, I think that is all for now. With that I will leave you with some new photos!
April 12th
The date is about a month away, but we knew it would be sometime in April since the surgeon needs her to be at least 6 months old before she performs the surgery. This is a good thing because it gives us time to try and get Joe home to be here and everything. The only con is if she was to get sick, we need to have it cleared up at least a week before surgery. So fingers crossed she stays well and we can keep everything on track.
This past week has been so much fun, Rooster does something new everyday!! We went to the big pool yesterday, and of course she loved it. She would float in her little float and then I would take her out and she would splash and giggle. The cutest thing was her wearing her little sunglasses! Out of nowhere yesterday she started getting herself up onto her knees and rocking. I took this video earlier while skyping with Joe.
As some people know I co-sleep with Rooster and once she has this surgery we will have to give that up( :( ), but getting her into a crib, is not so easy..Today though,as in right now, she is peacefully napping in her crib. I put her in there and only had to go back in one time and she was out. So a big hooray for that as well.
Okay, I think that is all for now. With that I will leave you with some new photos!
Last night was her first night in a highchair!! She LOVED it, plus she enjoyed some of my apples. She is getting to be such a big girl.
She laid here for a long time just a talking and slamming on the keys.
She knows she is cool.
Really kid?
Bath time = her favorite time of the day!
This is what happens when you put her in water. She loves it.
Friday, March 9, 2012
Appointment updates
This week we had two different appointments to go to before we go back to the surgeon next week.
On Monday she had her CT scan appointment to make sure everything else looked okay and it was just the one fusion. Rooster was a trooper and laid perfectly still while the scan took place. I picked up the report on Wednesday and thankful it is just the duel coronal fusion, and no other abnormalities.
On Friday we met with the eye doctor to check and see of there was any intercranial pressure. Rooster was great the whole appointment. She never fused or cried when we made her do all the little tests. As of now there are no signs of intercranial pressure. She is showing signs of being near sighted though, we will just have to keep an eye out for that as she gets older.
We go back to the surgeons office on Wednesday to go over all the results on a deeper level. I do believe this will be our last time seeing the surgeon until her actual surgery date.
This week we had a new 'first'!
-Rooster went in the pool for the first time on Tuesday. She loved it for a bit, but then she got tired and hungry.
She got tickle me elmo in the mail today, and he is already a hit. We also got the stuff from the house in NY last night, so we have plenty of clothes to last our stay, plus all of Rooster food trays for solids.
Monday, March 5, 2012
Hello World
As with any blog it needs an introduction, and I will follow that lead here as well. My name of course is Jaclyn, and my husbands is Joe. In September 2011 I gave birth to our first child, a beautiful baby girl who will call Rooster. She was beautiful and everything seemed great. She had a crease in her forehead, but they said it was most likely due to the way she was laying in me. At 2 months we had an ultrasound of her soft spot because it seemed rather large. Everything came back normal and we went on with our lives thinking things were great. Flash to her 4 month appointment while in Florida visiting and everything changed. The pediatrician here said something wasn't right, so we went to see a pediatric neurosurgeon to see what they said. The neurosurgeon said that Rooster has Craniosynotosis, you can read more about it here. The jist of it is that some of the bones in her head have fused prematurely.
Now we are preparing for surgery, we are also trying to get Joe home so that he can be here for her surgery. We went for our CT appointment this afternoon, and this Friday we have our eye exam. Until our surgery we will be going about our days as normal.
Some facts about Rooster:
She is 5 months old & is 13 pounds
She loves Elmo, in particular the youtube video Elmo and I know it
She is already a water bug, and will spend hours in the tub if you let her.
Since being in Florida she has enjoyed spending our afternoons outside.
She loves any food in the mesh bag things...with a spoon, she is rather picky.
There is so much more I could name, but these are our newest things.
Now we are preparing for surgery, we are also trying to get Joe home so that he can be here for her surgery. We went for our CT appointment this afternoon, and this Friday we have our eye exam. Until our surgery we will be going about our days as normal.
Some facts about Rooster:
She is 5 months old & is 13 pounds
She loves Elmo, in particular the youtube video Elmo and I know it
She is already a water bug, and will spend hours in the tub if you let her.
Since being in Florida she has enjoyed spending our afternoons outside.
She loves any food in the mesh bag things...with a spoon, she is rather picky.
There is so much more I could name, but these are our newest things.
This is Rooster at birth. You can see the crease in her nose.
This is Rooster today!
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